Archive for May 2016

My 8hrs of being a Lobbyist in DC..or…My Feet Hurt….

Representative Barbara Comstock (VA) Visit.

As many of you know, I attended a One Voice Against Cancer (OVAC) lobby day in Washington DC where over 20 organizations came together to lobby lawmakers to ensure full funding for the National Cancer Institute (NCI) and National Institutes of Health (NIH) as well as other funding requests that directly impact the cancer fight.

What made the OVAC event an overwhelming positive experience is the fact that not once did I sense that any individual’s personal cancer story was any less relevant than anyone else’s and yes that was indeed a refreshing experience. It reaffirmed my belief that there are indeed people and organizations that are morally and ethically correctly aligned in the fight against cancer.

Our Virginia group consisted of a representative with not only her own family cancer story but also involved in the Stomach Cancer fight, as well as an individual involved with the Cutaneous T-Cell Lymphoma. Personally,  before today I never heard of Cutaneous T-Cell Lymphoma which only goes to voice even louder that cancer research must be fully funded. Many of these lesser known cancers are no less important and their fight for the same research and their cures and improved treatment needs to found as well.

Not one Representative that we met with thought that funding the NCI and NIH as requested was a bad thing, nor did I expect anyone to do so.  Polling numbers showed that 90 % of those polled believed this to such an important national issue that it deserves to supported by both sides of the isle.  I would love to meet with a representative who thought funding the NCI, NIH or the Cancer Moon Shot initiative was a bad thing for this is the individual who deserves to hear why this is so important.  As many of you already know, just tell me when and where I can meet this individual and I’ll be there.

While only time will tell how t his will play out in the National budget process, I can assure you that those representatives that committed to  being a Champion for the Cancer Fight will continue to hear our collective an individual voices until the process is complete and cancer research becomes and stays a National priority.

To be Continued…..

Thanks for checking in…

 

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