Archive for Cancer

Advocating for Childhood Cancer Isn’t Easy But There Is One Thing Even More Difficult…

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It’s been a busy month supporting the annual United In Grace’s 2017 Wes’ Wish Toy Drive. We are overwhelmed with the community support we continue to receive including from our local business partners who are acting as drop off locations throughout the local area, our donors who are sponsoring Chemo Ducks, and of course our friends and family who are helping to collect toys and spread the word. We could not do this without the support of each and every one of you, Thank You !!

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Cancer Warrior / Fighter Badge of Honor, Respect & Support

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It seems like 2017 is nearly ½ over already and there is so much work still to do…..

I have completed all the LiveStrong events I plan to participate in during 2017.   I am now concentrating my efforts on supporting my local cancer organizations and their efforts to help bring cancer awareness, education and support.  As I have stated before, we as advocates should not only be thinking national level advocacy, if by doing so we risk losing focus of those fighting this disease in our local communities, neighborhoods and backyards.

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2017 Mid-Year Update

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It’s been a busy few weeks since my last post. We had a successful LiveStrong Day in the Workplace where employees had the opportunity to use our new fitness center and help raise funds against Cancer. While the final numbers are still being calculated it was a great opportunity for folks to come out and try their hand at either the elliptical, bike or the treadmill. Every mile logged helped raised funds that go directly to helping cancer patients in their battle.

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Chasing The Federal Penny

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It’s been a productive year to date  with regards to the cancer fight BUT there is still is much work still to do.  If fighting cancer was easy we probably wouldn’t have to be fighting in the first place.

There has been a lot of discussion regarding the President’s proposed budget and the detrimental impact this will have in the cancer fight and the recent approval of a temporary spending bill that increases the budget for the Nation Institute of Health (NIH) which is critical to the cancer fight.

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The Moral Compass of a Cancer Organization

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It is so important for cancer organizations to always put the cancer patient first and foremost in everything they do. They are the reason we chose to fight this fight. Organizations that put themselves front and center first, do much more damage to the cancer community as a whole.

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2017 Cycling Season Underway !!

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It’s been awhile since my last update and post.  Truth be told I was afraid I forgot the LOGIN information which goes to show it’s been WAY too long. I will endeavor to do better with updates as the 2017 Cycling season is upon us.

We had a great end to 2016 with the Wes’ Wish Toy Drive.  We were able to help collect and distribute over 2000 Toys to Children and families battling a long list of diseases including cancer and Sickle Cell. Even though it’s been a few months since the events we are forever great full to all our supporters and donors that help each year to make this event possible.  Through this effort we continue to provide United In Grace Care Boxes to some childhood cancer fighters and we hope to continue this effort throughout the year.

I was once again selected to be a LiveSTRONG Volunteer Leader in Virginia where I hope to continue the work n helping to represent ALL Cancer patients in their fight.  Team LiveStrong had a great showing in the recent 2017 Virginia Beach Shamrock Marathon as well as provided some bike support in the local Sentara Don’t Sit On Colon Cancer 5K.  Both events were a huge success and only goes to support my belief that there is way too much Cancer affecting way to many people and the spectrum is so diverse that no cancer patient should be left behind.  I hope to continue my work with LiveStrong in coming months including advocating for a federal budget that helps move cancer research for ALL cancer patients forward and not backward. If you are aren’t aware, we have a lot of work to do at the Federal level to make sure we don’t take a step backwards !! Please get involved by contacting your own Legislators to ensure funding for the National Cancer Institute and National Institute Health both receive the funding they need to continue their work. 

In July I will participating in the 24 Foundation’s 24 Hour of Booty – Charlotte Ride. This is a great event that helps support the Levine Cancer Institute and the Levine Children’s Hospital.  Both of the organizations are doing exceptional work providing research and care to those battling cancer and both are honorable and reputable benefactors of the 24 Foundation’s 24 Hour events. Many of my LiveStrong team members will be participating in the Charlotte and Indianapolis events helping to Kick Cancer To the Curb Once again.

As always i hope all my followers will stay tuned in for future and hopefully more timely updates.

 

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Every Cancer Story Counts Cycling Challenge is On !!!

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 The Every Cancer Story Counts Cycling challenge is well underway , ok only really 4 days in but it has started and I’ve been able to stay ahead of my daily cycling goal.  Let’s just hope that Hurricane Mathew doesn’t impact my ability to ride but the cycling challenge is less about the riding and more about sharing why Every Cancer Story is important by introducing you to some of the toughest cancer fighters I have come to know over the years who battled this horrible disease.

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There is No On/Off Cancer Switch

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As the 2016 cycling season winds down I thought it only appropriate to end with a BANG!!

As many of you know I support and fundraise for many organizations throughout the year. My work with the local Childhood Cancer Awareness Group United in Grace as well as a volunteer LiveStrong Foundation Leader. Both of these organizations have only the very best intentions in helping to bring awareness to the cancer fight and both organizations understand that it must always be about the cancer patient and the impact this dreaded disease has not only on the cancer fighter but the entire family.

I also believe by supporting and yes even fundraising for multiple organizations its helps to create what I believe is missing in the cancer community which is the belief that we can all work together and within our own communities in a respectful manner resulting in even a bigger and positive impact locally, nationally and globally.

Trust me when I say there are enough organizations out there that only believe in a “what’s in it for ME” mentality and only wait for the next opportunity or to start beating the cancer drum. Unfortunately, cancer patients and their families don’t have a switch to turn on and off whenever the mood strikes.

As such for the last 90 days of 2016, as I have done the entire 2016 season, I will be cycling in support of the stories that others dismissed or otherwise looked away from because they didn’t feel their story was worth telling. We will continue to tell our story despite attempts to shut us down through false profiles and intimidation because our fight is right and so are the cancer stories I will be sharing with you all.

For my new followers these stories will provide a glimpse into some of the toughest cancer fighters I have had the honor to know and why Every Cancer Story Counts is more than a social media #hashtag.

LiveStrong  provides outstanding programs and services to the cancer community.  For more information about LiveStrong please visit LiveStrong

To visit the LiveStrong Every Cancer Story Counts Cycling Challenge please visit Every Cancer Story Counts Cycling Challenge

Stay tuned in for more updates.

 

Replace Awareness with Action

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  Today (September 1st) marks the beginning of Childhood Cancer Awareness Month. This is the time of year that many organizations and individuals join in the fight against childhood cancer and help to bring awareness and funding to the fight against this disease.

For some of us that have the same vision throughout the entire year we say “Thank you” and appreciate the emphasis your engagement will have over the course of the September.  We believe only by working together can we truly make the necessary strides required to bring attention to this cause.

While awareness is great and we definitely can’t have too much awareness, I would further challenge readers and followers to take “Action” by doing something that helps carry this message well beyond the end of the month.

Some examples of “Actionable”’ items include,

  1. Writing a letter to your State and National Legislators urging them to increase funding at both the State and National levels for childhood cancer research. There are many online tools to help you craft and send emails directly to your state and national representatives.
  2. Volunteering at a local childhood cancer hospital (or any cancer center) and learning what programs and services they offer. Share what you learn.
  3. Contacting a local Non Profit Cancer organization and seeing if you can help them.
  4. Participate in local events that help to raise awareness in your local community. If there isn’t’ an event, start one.
  5. Find an organization that you believe in and learn what programs and services they offer. Share what you lean with your networks.

Only by working together, not only during the month of September but the rest of the year, can we truly make a difference in not only childhood cancer but all cancers including Children, Young Adult, Adult, and Seniors, after all doesn’t #Everycanstorycount ?

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Disclaimer:  Please excuse any typos as my editor is on vacation.

Fight As One is in our DNA

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Thank you to everyone that supported the 24hrs of Booty in Charlotte NC a few weeks ago. While the final numbers are being computed we do know that because of your efforts over $1.6 Million was raised for local and national cancer programs. This is an amazing amount of donor support that will go directly to helping those battling cancer and in providing much needed cancer research and we couldn’t have done it without your help and your support , Thank YOU !!!

As many of you may not know, while we were riding in Charlotte many of my fellow LiveStrong Team members were out supporting us, encouraging, and motivating us throughout the event by holding events in their own local communities. Now it’s time to return the favor and support my LiveStrong Team in their upcoming 24hrs of Booty – Columbia.

I can’t say this enough, LiveStrong is a team of individuals who work together to help bring support to Cancer patients and we do that in a respectful and courteous manner. We do this by organizing  events within our local communities, by participating in other local and national events such as LiveStrong Challenge Austin (October) , 24hrs of Booty, and by supporting each other in those efforts. More importantly we check our egos at the door and come to the Fight As One. The reason LiveStrong is a great team is because the FightAsOne mantra is in our DNA.

In an effort to return that support provided to the Booty Charlotte team, I will be doing a local Weekend Mileage challenge trying to get as many miles in during the weekend of 20 – 21 August in an effort to bring awareness to the LiveStrong mission as well as support the LiveStrong Team participating in the 24hrs of Booty – Columbia MD.

During this event I will be seeking support through donations that 100% directly support the LiveStrong Foundation.  Only by doing it this way can I reassure each supporter that all donations will be used in direct cancer support and used in a ethical and respectful manner.

As many of you know, Columbia – Booty had a special place in our hearts for many years and was our yearly cancer victory weekend celebration for Deb and I.  My support and trust of the LiveStrong team in Columbia in no way implies support to any other benefactor that benefits from this event.  I support the LiveStrong Team when and wherever they may ride.  LiveStrong has the ethical qualities that I believe is vital part of a cancer organization’s core values.

Stay tuned in for more updates….. .

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