Welcome to September, Childhood Cancer Awareness Month. A month dedicated to helping to bring awareness to the childhood cancer fight. This year we were successful in nearly doubling our local businesses participating in our awareness campaign. It is so critical to have not only individual support but community support as well. We are so grateful for everyone’s participation and involvement, We couldn’t do this without everyone’s support !!! Thank you !!!
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I titled this post as I did in order to emphasize once again that there are people who are doing more harm than good for the cancer community, shocking I know. They don’t think twice about creating false profiles to advance their cause or in attempts to silence any cancer story that doesn’t directly impact or help their financial bottom line.
It’s been awhile since my last update and post. Truth be told I was afraid I forgot the LOGIN information which goes to show it’s been WAY too long. I will endeavor to do better with updates as the 2017 Cycling season is upon us.
We had a great end to 2016 with the Wes’ Wish Toy Drive. We were able to help collect and distribute over 2000 Toys to Children and families battling a long list of diseases including cancer and Sickle Cell. Even though it’s been a few months since the events we are forever great full to all our supporters and donors that help each year to make this event possible. Through this effort we continue to provide United In Grace Care Boxes to some childhood cancer fighters and we hope to continue this effort throughout the year.
I was once again selected to be a LiveSTRONG Volunteer Leader in Virginia where I hope to continue the work n helping to represent ALL Cancer patients in their fight. Team LiveStrong had a great showing in the recent 2017 Virginia Beach Shamrock Marathon as well as provided some bike support in the local Sentara Don’t Sit On Colon Cancer 5K. Both events were a huge success and only goes to support my belief that there is way too much Cancer affecting way to many people and the spectrum is so diverse that no cancer patient should be left behind. I hope to continue my work with LiveStrong in coming months including advocating for a federal budget that helps move cancer research for ALL cancer patients forward and not backward. If you are aren’t aware, we have a lot of work to do at the Federal level to make sure we don’t take a step backwards !! Please get involved by contacting your own Legislators to ensure funding for the National Cancer Institute and National Institute Health both receive the funding they need to continue their work.
In July I will participating in the 24 Foundation’s 24 Hour of Booty – Charlotte Ride. This is a great event that helps support the Levine Cancer Institute and the Levine Children’s Hospital. Both of the organizations are doing exceptional work providing research and care to those battling cancer and both are honorable and reputable benefactors of the 24 Foundation’s 24 Hour events. Many of my LiveStrong team members will be participating in the Charlotte and Indianapolis events helping to Kick Cancer To the Curb Once again.
As always i hope all my followers will stay tuned in for future and hopefully more timely updates.
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Hello Everyone and Thanks for Checking in…
Our Every Cancer Story Counts Cycling Challenge went well although I didn’t get in the amount of mileage I had hoped for but I believe the impact we had far outweighed any mileage goal. We were able to help out a fellow LiveStrong Leader in getting closer to her goal fundraising and a trip to the LiveStrong Challenge in Austin Texas later this year and I want to thank everyone who donated and supported the cause.
I altered my plan and did the ride on Friday as Saturday’s weather with forecasted thunderstorms during the day might hamper our efforts. As it turned out Friday was a great day to ride in the morning and the cloud cover kept the sun from beating down but unfortunately the rain showers with some thunder and lightning came rolling in around 2pm forcing me off the bike. As a result I never got back on my bike until after 4pm and as a result I had cooled down twice already and my body started to ache by early evening. As in many endurance sports, once you cool down and your body begins its recover phase it’s even more difficult to get your body going again. Usually I am able to recover once but the second shower storm did me in and there was no recovery from that and the recliner started to feel better and better.
The good news is we were able to get 65 miles in and as this was my first long ride of the season, nothing longer than 20miles so far this season, I feel I am still on the right path for my return to full duty by the years end. Unfortunately when I woke up on Saturday I discovered I already came down with a chest cold and decided to play it safe and not venture out. Almost a week later I am still battling the cold so the “off the bike” Saturday decision proved d to be the correct call.
However the mileage wasn’t the only goal of the event and it surely wasn’t the most important goal which was to expand the LiveStrong mission to those I met and interacted with during the ride. I stopped numerous times to chat with our neighbors and tell them what I was doing and why it was so very important. Nearly everyone I met with was supportive of the event and the more important the cause. Many of those that I met hung the LiveStrong wristband on their mailbox or from other areas of the yard in order to motivate me as I rode past and most are still there today.
I had the opportunity to bring the LiveStrong message to them in their own neighborhood and where they lived. The opportunity to pass out and share some LiveStrong wristbands and LiveStrong “we can help” cards far exceeds the importance of reaching any mileage goal. I think this is one of the strengths of the LiveStrong Foundation and those that work & volunteer for the organization and that is a clear and unconditional belief that It must always be about the people affected by cancer. While some organizations like to use the motto Every Mile Matters , I prefer to say Every Cancer Story Counts.
Stay tuned in for future updates as we continue to bring the LiveStrong message to other neighborhoods and possibly even your community.
Answer to yesterday’s question “What is the significance of 1,521 ?”
it’s the actual distance between Chesapeake, VA and Oldenburg , Germany. So why is that important ? This weekend two individuals, Henrike (Fellow LiveStrong Leader) and I will take on our own personal cycling challenge in the fight against cancer and to support the #Livestrong mission.
For 24 hours (‘sh) we will challenge ourselves either by cycling, running or walking ( I’m not running ) in an effort to raise cancer awareness in our own local communities.
The good news is we will have the option to stop after 24 Hours, however cancer patients don’t have that option. They fight every day and that my friends is really the only true significance of why we are undertaking this personal challenge.
So while our #LiveStrong teammates are participating in 24hrs of Booty in Columbia MD, we are supporting and cheering on their efforts because we believe as a team we can have a far greater impact in the fight against cancer and #FightAsOne than we can ever have individually. #unityisstrength
Please help LiveStrong Foundation continue to provide the program and services not just for one day or one event but the rest of the 364 days of the year. Please consider making any size donation to
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This will be a short update to let you all know what’s coming up in the next few days.
As many are aware, I will be supporting my LiveStrong Team that will be participating in 24hrs of Booty Columbia by participating in my own cycling challenge within my own local area. I will be riding to promote the LiveStrong mission in and around my own community, let’s just call this LiveStrong in My Community Ride. All donations and proceeds collected will go 100% to LiveStrong and the programs and services and fights to improve the lives of people affected by cancer now.
I am asking that all donations be made to one of my fellow LiveStrong Leader’s fundraising page (Henrike Hirsch, Olendburg Germany) in order to help her reach her goal necessary to participate in the LiveStrong Challenge in Austin later this year.
For those that have been following along should already know, I am a true believer in we can do more by working together than we can individually but when needed I don’t fear being the single voice in a fight worth fighting. Please consider making any size donation by visiting https://www.teamlivestrong.org/fundraising/fearless/ .
You may even win some pretty cool LiveStrong swag.
So why am I undertaking this challenge locally ?
Because Deb’s Cancer Story Counts
Because my Father’s Cancer Story Counts
Because Wendell’s Cancer Story Counts
Because Mary’s Cancer Story Counts
Because Wes’ Cancer Story Counts
Because Sue’s Cancer Story Counts
Because JP’s Cancer Story Counts
Because Jane’s Cancer Story Counts
Because Aunt Annie’s Cancer Story Counts
Because Aunt Ginny’s Cancer Story Counts
Because Sandy’s Cancer Story Counts
Because Jimmy’s Cancer Story Counts
Because Fred’s Cancer Story Counts
Because Every Cancer Story Counts !!
Once again please consider making any size donation to support the LiveStrong Mission to ensure all Cancer Stories Count.
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Thanks for checking in…..
First and foremost, we wish to thank everyone who donated to the last minute 24hrs of Booty ride in Charlotte. Your donations helped us reach our goal in only a short few days. We are sorry we had to rush but once an opportunity to represent all those battling cancer and the LiveStrong Foundation we try our best to make an effort to see it through and we couldn’t have done it without you.
The Charlotte community definitely put on a great show of support for the 24hrs of Booty event. The involvement from the local community is something rarely seen. There were hundreds of folks lining the streets, ringing cowbells and encouraging the riders throughout the entire event. I had the opportunity to stop and thank many of these folks as I made my way around the 3-mile Booty loop. Everyone I talked to seem genuinely interested and appreciative of the fact that all of us were riding against cancer, in honor of someone, or in memory of someone we knew that battled this horrible disease.
By far the biggest enjoyment was the interaction of people stopping by the LiveStrong table and the opportunity to hear about their cancer story and share our own. I can say that no one who attended 24hrs of Booty ever should leave feeling that their cancer story doesn’t matter. We interacted with all demographics of the cancer community and emphasized that their cancer story, or their loved one’s cancer story was no less important than any others. In addition, the opportunity to chat with fellow LiveStrong Leaders and LiveStrong Staff only made the trip to Charlotte all that much more worthwhile. Not once did I feel that any LiveStrong member ever felt that OUR cancer story shouldn’t be told.
The money raised by the event goes to support many worthwhile Charlotte local and national cancer programs including the Levine Cancer Institute, an amazing organization providing only the best in cancer care services and research. I had the chance to stop by Levine Cancer Institute tent and chat with some of the staff and once again they were so thankful for everyone’s involvement and participation.
While I will miss doing the 24hrs of Booty in Columbia I believe the 24hrs of Charlotte can bring as much enjoyment and may become our new cancer celebration location for years to come.
Thanks again and stay tuned for upcoming cycling challenges to help bring awareness to the cancer fight and to ensure that Every Cancer Story Counts.
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Recently I had the opportunity to sit down with Senator Tim Kaine’s staff as a follow up to the May’s One Voice Against Cancer (OVAC) conference. This time however I was able to provide a more detailed and personal view of the cancer fight and why we will continue to advocate for full funding of the National Cancer Institute (NCI) and the National Institutes of Health (NIH) in the fight against cancer. I was able to emphasize how a relatively small in comparison a 500 million reduction only jeopardizes the National Cancer Moon Shot goal of completing 10 years of research in just 5 years and how any future “markups” (reductions) of the NCI and NIH funding through the federal budget process is not OK.
This meeting provided the ideal setting to further explain how cancer is affecting a family right here in our own backyard and community, and how the impact of receiving distant treatment required add challenges to their cancer fight. While the meeting only lasted 20 minutes the opportunity to once again put cancer research as a MUST HAVE in any national budget / appropriations bills going forward is no less important today as it was in May or will be in the months to follow.
It is critically important to continue this discussion with all our national and local leaders. In future weeks I hope to meet with more national, state, and local leaders and perspective candidates to continue advocating that the time is now to make Every Cancer Story Count.
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Thanks Everyone for Checking in…….Let’s get right to it !!!
Since President Obama’s most recent State of The Union Address there has been a lot of discussion regarding the cancer moon shot initiative.
This cancer moon shot is more than just a buzz word being used to promote a political agenda, it’s a series of steps and actions that are taking place both globally, nationally and within our own local communities necessary to elevate the idea of “hope” of doing what seems to be the impossible. The cancer moon shot is a vision and a vision that is long overdue by our government leaders.
In 2008 I attended my first LiveStrong summit where we spent 3 days hearing speakers from the medical profession, cancer advocacy groups, and others speak on the direction cancer prevention and advocacy was going both nationally.
We even had t cancer survivor and then Presidential Candidate Senator John McCain speak about what he would do to support the cancer fight, if elected. While Senator McCain gave an outstanding political speech, he failed to convince me that he had a vision to bring the very best in the cancer community together as one in the fight against cancer.
In 2008 those that were attending the LiveStrong summit knew, as we know now, that the answer and ANY successful vision had to include bringing the very best, the very motivated, and the very passionate, in all areas of the cancer community together as one. Only by doing so would we as a nation, and globally, have a fighting chance to make significant progress in the cancer fight.
Today’s cancer moon shot is targeting many areas of the cancer fight but it’s reachable goal is to make 10 years of progress in the cancer fight in just 5 years and in doing so help provide hope to the millions of cancer patients that are fighting today and those that will be fighting tomorrow.
It has taken years to have a visionary such as VP Biden at the helm of the initiative. For many the results of the cancer moon shot will not come fast enough, but they will come. Steps are being taken today in many areas identified in this national initiative and coordinated efforts are being made among government agencies and many private sector cancer research centers.
While I am fairly confident in saying that most of my readers of this blog aren’t at the national level of the efforts, you are no less important to the cancer moon shot and the impact it can make today on those fighting cancer.
I would further challenge everyone to get involved within your own local communities in any way you can in helping to raise awareness and or bring attention the cancer fight and when the opportunity presents itself make sure your voice is heard.
For more on the moon shot please visit the Cancer Moon Shot fact sheet.
What makes the Cancer Moon Shot so important to me ? It’s not going to leave anyone behind, there is enough room for everyone and Every Cancer Story Counts.
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Greetings everyone and as always thanks for checking in….
The 2016 cycling season has been somewhat hampered by the string of cold weather but I remain hopeful that we will be out hitting the streets soon enough all in an effort to help raise awareness for many of the causes we will be riding for. We will have our first official event in the 2016 Kick Cancer to the Kurb Tour in April when the United in Grace Cycling Team will be participating in Virginia Tour De Cure. It’s not too late to join the team or to donate to the team and help bring awareness to fight against Childhood Cancer and Diabetes ….You might say we are having a two for one sale !
The Fight against childhood cancer will remain our main focus for 2016 however we also wish to recognize many of the other charities we hope to support. I’ve said this many times and will continue to say, while there are many organizations worthy of our effort I truly believe only by working together regardless of our own affiliation will we help bring attention, increase government funding, and above all a cure to many of the diseases. That is why I will continue to support my family and friends in their own personal passion and drive in helping where I can in the fight against Diabetes, Multiple Sclerosis (MS) , and Cystic Fibrosis just to name a few.
The United in Grace Team is kicking off our 2016 Care Packages for Cancer Soldiers initiative. This is a great opportunity to sponsor a care package directly to a child and family battling cancer. Throughout the year we will be seeking donations that will go directly to constructing a care package that contains items for both the child undergoing cancer treatment as well their family.
A small donation of $20.00 will help bring smiles to children battling cancer. Please consider donating directly to the United in Grace Fund Raising page at United In Grace .
You may also request a care package to a cancer warrior or donate items, please check out United In Grace Care Packages for more information.
Thanks for checking in and we will try and provide more updates more frequently 🙂